(In)visible (Dis)abilities


a site about both disabilities (visible and invisible) and also my specific invisible disabilities


(In)visible (Dis)abilities speech

A speech about my life story//my invisible disabilities, and the struggles of having an invisible disability


klippel trenaunay syndrome (KTS)

a condition that affects the development of blood vessels, soft tissues, and bones, and vascular malformations.

  • KTS affects about 1 out of every 100,000 people (0.001%)

  • There is no known cure or treatment for KTS

  • Risks/Symptoms include: excessive bleeding, prone to blood clots (superficial and deep thrombosis), poor blood flow, swelling, chronic pain, poor mobility etc.

  • KTS is not genetic, or inherited, it occurs during cell division


Post Thrombotic Syndrome (PTS)

a condition that can happen to people who have had a deep vein thrombosis (DVT) (a blood clot)
It can cause chronic pain, swelling, and other symptoms.

  • PTS affects about 1 to 2 of every 1,000 people

  • is most common in ages 65 and older

  • Risks/Symptoms include: chronic pain, ulcers, poor blood flow, prone to blood clots (superficial and deep thrombosis), swelling, poor mobility etc.

  • PTS can be inherited, through blood disorders; but it can occur after a recent surgery, medical conditions that limit your mobility, long periods of travel, (like sitting down a long time), Injury to a deep vein, pregnancy, and cancer treatment etc.


Disability Statistics


about 26% (every one in four) of adults in the United States, have some type of disability, which results in over 61 million people in the US having some type of disability. Of that 26% of the population with disabilities: 13.7% have a mobility disability,10.8% have a cognition disability, 6.8% have an independent living disability, 5.9% have a deaf or hearing disability, 4.6% have a vision disability, and 3.6% have a self-care disability.


about 10% (every 1 in 10) of Americans have a medical condition which could be considered an invisible disability. 96% of people with chronic medical conditions live with a condition that is invisible


Disabilities in the workplace


The American Disabilities Act (ADA) is a civil rights law passed in 1990 that prohibits discrimination based on disability in employment, transportation, public accommodations etc.

It isn't uncommon for employers to try to steer clear of employees with disabilities because they believe that the cost of hiring and accommodating employees with disabilities will be high; which is far from the truth. Some employers worry that treating employees with disabilities in the workplace under the same scrutiny as the rest of the staff members might make them seem discriminatory. Most people with disabilities don't disclose their disability in a job interview, but disclose after they have gotten the job, in fear that they would not be hired because of the employers knowledge of their disability.

According to the US census bureau people with severe disabilities working full time earn approximately $1,000.00 less per month than non-disabled workers, and 13.3 million people with disabilities age 16-64 have experienced difficulty finding employment because of their disability.


Ableism


Ableism is discrimination and social prejudice against people with disabilities or who are perceived to have disabilities. Ableism characterizes persons as defined by their disabilities and as inferior to the non-disabled. Examples of Ableism include and are not limited to: failing to provide accessibility (following the ADA), use of ableist language (language that is offensive to people with disability. ie. derogatory, abusive or negative language, and/or making fun of disabilities), Able-bodied people failing to check their privilege (ie. using a handicapped stall), assuming disabilities are only/always visible.


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